Our little boy Oliver is a happy and healthy 2 year old. He loves water, his sisters, playing with anything noisy and laughing lots! He loves FOOD too. He also has a very rare genetic condition which means he will always be different to his sisters. Different to other boys his age. Differently able. He isn’t meeting the usual milestones. The condition is so rare nobody can really tell us how it will be for him so Ollie is going to show us his path and we are going to follow him and advocate for him and pick him up whenever he may fall. He is such a happy little boy who is teaching us what love really, truly is. Teaching us who we really are. We welcome this journey with him, for him. We hope to document some of the highs and lows along the way on this blog.